Email this article ‘MY ANCESTORS WERE DISPLEASED WITH ME’ – CHILDHOOD EMBODIMENT OF VARIANT INTERSEX DEVELOPMENTS IN SOUTH AFRICA
(1) University of South Africa, South Africa
(*) Corresponding Author
Abstract
South Africa constitutionally promotes affirmative gender and sexual diversity education, but the curriculum assumes normative bodies with binary classifications of external genitalia. Children born with intersex development present variant chromosomal, gonadal, or genitalia that deviate from the norm. Lensed through the Theory of Unintelligibility, these bodies are seen as ambiguous and derogatively labelled as hermaphrodites or Disorders of Sex Development (DSD), making them incapable of integration into socio-educational environments. This phenomenological study explores how young adults born with variant intersex characteristics learned about and embodied their sexual identity during their school years, using in-depth interviews with six participants selected with the support of Intersex South Africa. The evidence shows that participants lived in confusion for a large part of their childhood due to frequent hospital visits, examinations, surgeries, and family reactions without explanation. Learning about male and female bodies at school confirmed the messages about their abnormal bodies, resulting in self-hate and isolation. There is a need for child psychology services to support medical professionals, families, and educators in addressing variant intersex developments, providing trauma therapy for children, and including intersex development alongside normative sex development in sexuality education and awareness.
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Adriansen, H. K. (2012). Timeline interviews: A tool for conducting life history research. Qualitative Studies, 3(1), 40-55. https://doi.org/10.7146/qs.v3i1.6272
Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77-101. https://doi.org/10.1191/1478088706qp063oa
Bryman, A. (2016). Social research methods (5th ed). Oxford University Press.
Butler, J. (1993). On the discursive limits of 'sex'. Routledge.
Carpenter, M. (2016). The human rights of intersex people: Addressing harmful practices and rhetoric of change. Reproductive Health Matters, 24(47), 74-84. https://doi.org/10.1016/j.rhm.2016.06.003
Carpenter, M. (2018). The "normalization" of intersex bodies and "othering" of intersex identities in Australia. Journal of Bioethical Inquiry, 15(4), 487-495. https://doi.org/10.1007/s11673-018-9855-8
Cense, M. (2019). Navigating a bumpy road. Developing sexuality education that supports young people's sexual agency. Sex Education, 19(3), 263-276. https://doi.org/10.1080/14681811.2018.1537910
Collison, C. (2018). Intersex babies killed at birth because "they're bad omens". The Mail & Guardian. https://mg.co.za/article/2018-01-24-00-intersex-babies-killed-at-birth-because-theyre-bad-omens/
Creighton, S. M., Michala, L., Mushtaq, I., & Yaron, M. (2014). Childhood surgery for ambiguous genitalia: glimpses of practice changes or more of the same?, Psychology & Sexuality, 5(1), 34-43. https://doi.org/10.1080/19419899.2013.831214
Creswell, J. W., & Poth, C. N. (2016). Qualitative inquiry and research design: Choosing among five approaches (4th ed). SAGE.
Crocetti, D., Arfini, E. A. G., Monro, S., & Yeadon-Lee, T. (2020). You're basically calling doctors torturers: Stakeholder framing issues around naming intersex rights claims as human rights abuses. Sociology of Health & Illness, 42(4), 943-958. https://doi.org/10.1111/1467-9566.13072
Cudjoe, E., Abdullah, A., & Manful, E. (2021). Parents' perceptions on the outcomes of children's participation in child protection meetings in Ghana. Journal of Child and Family Studies, 30(4), 1071-1081. https://doi.org/10.1007/s10826-021-01918-2
Cuevas-Parra, P. (2020). Co-researching with children in the time of COVID-19: Shifting the narrative on methodologies to generate knowledge. International Journal of Qualitative Methods, 19, 1-12. https://doi.org/10.1177/1609406920982135
Davis, G. (2015). Contesting intersex: The dubious diagnosis. New York University Press.
Eastham, R., & Kaley, A. (2020). We're talking about you, not to you: Methodological reflections on public health research with families with young children. Qualitative Health Research, 30(12), 1888-1898. https://doi.org/10.1177/1049732320917927
Fausto-Sterling, A. (2000). Sexing the body: Gender politics and the construction of sexuality. Basic Books.
Goodson, I., & Sikes, P. (2001). Life history research in educational settings: Learning from lives. Open University Press.
Green, A. (2018). Government urged to ban intersex genital mutilation. Health-E News. https://www.health-e.org.za/2018/01/15/government-urged-ban-intersex-genital-mutilation/
Haghighat, D., Berro, T., Torrey Sosa, L., Horowitz, K., Brown-King, B., & Zayhowski, K. (2023). Intersex people's perspectives on affirming healthcare practices: A qualitative study. Social Science & Medicine, 329, Article 116047. https://doi.org/10.1016/j.socscimed.2023.116047
Hansen, E., Irungu, E., Nyagetuba, J. M., & Mbogo, J. (2022). Management of differences in sexual development: Evolution of an approach for a resource-limited setting. Annals of African Surgery, 19(4), 186-192. https://doi.org/10.4314/aas.v19i4.5
Harcourt, D., & Einarsdottir, J. (2011). Introducing children's perspectives and participation in research. European Early Childhood Education Research Journal, 19(3), 301-307. https://doi.org/10.1080/1350293X.2011.597962
Hart, B., & Shakespeare-Finch, J. (2022). Intersex lived experience: trauma and posttraumatic growth in narratives. Psychology & Sexuality, 13(4), 912-930. https://doi.org/10.1080/19419899.2021.1938189
Hegarty, P., Smith, A., & Bogan-Carey, T. (2021). Stigma as framed on YouTube: Effects of personal experiences videos on students' beliefs about medicalizing intersex. Journal of Applied Social Psychology, 51(3), 226-236. https://doi.org/10.1111/jasp.12570
Hsieh, H., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277-1288. https://doi.org/10.1177/1049732305276687
Igual, R. (2022). SA urged to follow Greece in banning intersex genital mutilation, Mamba Online. https://www.mambaonline.com/2022/07/23/sa-urged-to-follow-greece-in-banning-intersex-genital-mutilation/
Intersex South Africa (ISA), (2021). About us. https://www.intersexsa.org.za/about-us/ [Accessed on 10 April 2023, no longer available].
Iranti. (2018). National intersex meeting report 2018. https://www.iranti.org.za/wp-content/uploads/2018/11/National-Intersex-Meeting-Report-2018.pdf [Accessed on 23 March 2023, no longer available].
Jones, T. (2016). The needs of students with intersex variations. Sex Education, 16(6), 602-618. https://doi.org/10.1080/14681811.2016.1149808
Jones, T. (2018). Intersex studies: A systematic review of international health literature. SAGE Open, 8(2), 1-22. https://doi.org/10.1177/2158244017745577
Jones, T., Hart, B., Carpenter, M., Ansara, G., Leonard, W., & Lucke, J. (2016). Intersex: Stories and statistics from Australia. Open Book Publishers.
Lane, C. L. A., Cambridge, P., & Murphy, G. (2019). Muted voices: The unexplored sexuality of young persons with learning disability in Malta. British Journal of Learning Disabilities, 47(3), 156-164. https://doi.org/10.1111/bld.12266
Liao, L., Wood, D., & Creighton, S. M. (2015). Parental choice on normalising cosmetic genital surgery: between a rock and a hard place. BMJ, 351, Article h5124. https://doi.org/10.1136/bmj.h5124
Lundy, L. (2018). In defence of tokenism? Implementing children's right to participate in collective decision-making. Childhood, 25(3), 340-354. https://doi.org/10.1177/0907568218777292
MacKenzie, D., Huntington, A., & Gilmour, J. A. (2009). The experiences of people with an intersex condition: A journey from silence to voice. Journal of Clinical Nursing, 18(12), 1775-1783. https://doi.org/10.1111/j.1365-2702.2008.02710.x
Office of the United Nations High Commissioner for Human Rights (1989). Convention on the rights of the child. https://www.ohchr.org/en/professionalinterest/pages/crc.aspx
Roen, K. (2019). Intersex or diverse sex development: Critical review of psychosocial health care research and indications for practice. Journal of Sex Research, 56(4-5), 511-528. https://doi.org/10.1080/00224499.2019.1578331
Wiesemann, C., Ude-Koeller, S., Sinnecker, G. H., & Thyen, U. (2010). Ethical principles and recommendations for the medical management of differences of sex development (DSD)/intersex in children and adolescents. European Journal of Pediatrics, 169(6), pp. 671-679. https://doi.org/10.1007/s00431-009-1086-x
DOI: https://doi.org/10.24071/ijhs.v9i1.11921
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